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In 1984, a small group of parents across the country banded together to support, comfort and educate each other about the devastating disease affecting their children; Spinal Muscular Atrophy. Their purpose was twofold-to support families affected by SMA and to fund research leading to a treatment and eventually, a cure. Families of SMA has grown from this courageous group of families to an international network of fundraising and support including 30 volunteer Chapters throughout the United States. Since 1984, our legacy is one of unparalleled research progress and patient support, from grassroots fundraising to global scientific leadership. Families of SMA has funded over $50 million of SMA research in three areas: Basic Research, Drug Development and Clinical Trials.

"Thank you for your generous contribution to the Families of Spinal Muscular Atrophy. Because of your commitment to our mission, we are making tremendous strides towards a world where SMA is treatable and curable."

Kenneth Hobby
President
Families of SMA